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Medical sites that can be helpful to children:
Kids Cancer Network
http://www.kidscancernetwork.org/
A cancer survivor developed a “Fun Letter”, an eight page activities letter for children with cancer, including games to play, pictures to color and ideas to share. There are six issues that come out a year. Parts of a sample issue can be downloaded from this site. - Review 11/10/01
PatchWorx
http://www.patchworx.org
A safe, secure, moderated, online community for children who are seriously ill or disabled, with games, puzzles, and more. Make friends with common interests, and interact with Patches, the mascot. - Review 11/7/02
Blood Count Information for Kids with Cancer
http://coninfo.nursing.uiowa.edu/sites/pedspain/bcounts/index.htm
University of Iowa site that uses cartoon type characters to explain blood counts to kids. - Review 12/03/01
Cancer Source Kids
http://www.cancersourcekids.com
A site developed in partnership with the Association of Oncology Nurses with separate areas for kids 6-12, teens and parents. There are pages to learn about cancer, arts/activity pages, and a place to create a journal - Review 11/18/01
Bandaids and Blackboard
http://www.faculty.fairfield.edu/fleitas/contents.html
A great site for kids, teens and parents of kids with medical challenges. - Review 12/8/01
Kids Konnected
http://www.kidskonnected.org
Founded in 1993 by an eleven year old to connect children who have parents with cancer. Now a non-profit, offering free monthly support groups and on-line chat room and a 24 hour hotline that kids can call. (800-899-2866) - Review 4/18/03
Websites for Teens with cancer:
PatchWorx
http://www.patchworx.org
A safe, secure, moderated, online community for children who are seriously ill or disabled, with games, puzzles, and more. Make friends with common interests, and interact with Patches, the mascot. - Review 11/7/02
2bMe
http://www.2bMe.org
A site for teens with cancer. Biggest problem is that it loads slowly but has some great tips. - Review 12/08/01
The Ulman Fund
http://www.ulmanfund.org
A site for young adults with cancer- there is a discussion forum which may be useful.
Bandaids and Blackboards - Teen Section
http://www.faculty.fairfield.edu/fleitas/contteen.html
Thoughts and stories from teens with medical problems (not necessarily cancer). - Review 12/8/01
Starbright Videos with an Attitude
http://www.starbright.org/projects/vwa/index.html
Three potential videos provided to families free of charge that are designed specifically for teens. 1/ Back to school: Teens preparing for school re-entry, 2) Plastic eggs or something: cracking hospital life and 3) What am I chopped liver?: Communicating with your doctor. - Review 12/8/01
Websites for Siblings:
The Sibling Support Project
http://www.thearc.org/siblingsupport/
A national program dedicated to the interests of brothers and sisters of people with special health and developmental needs. The project is based at Children's Hospital and Regional Medical Center in Seattle, Washington. - Review 11/7/02
Emotional Responses of Siblings
http://www.patientcenters.com/childcancer/news/responses_siblings.html
Helping Siblings Cope
http://www.patientcenters.com/childcancer/news/helping_siblings.html
Both of the above give first hand accounts from several families on ways to help the brothers and sisters cope from Chapter 23 of Childhood Cancer: A Parent's Guide to Solid Tumor Cancers by Honna Janes-Hodder & Nancy Keene - Review 4/3/2
Sibling Needs- Helpful Information for Parents
http://www.autism.org/sibling/sibneeds.html
A short document that gives some tips on sibling issues with all disabilities - Review 4/3/2
Children With Disabilities: Understanding Sibling Issues
http://www.nichcy.org/pubs/newsdig/nd11txt.htm
A 17 page document that discusses some practical advice as well as research on the topic published by National Information Center for Children and Youth with Disabilities. - Review 4/3/2
My Brother is Different
http://www.ldonline.org/ld_indepth/family/mybrother.html
A short article dealing with learning disability sibs. The article discusses feeling of neglect, increased responsibility and guilt. Some suggestions are offered. - Review 4/3/2
Books for Parents:
The Never-Ending Squirrel Tale
Practical tips and encouragment for the parents of children with cancer .
Sunshine Faces
A photographic "journey" capturing the spirit, innocence, tenacity, courage, and playfulness of children...who just happen to be cancer patients.
In Loving Memory
In Loving Memory is an organization deciated to helping parents cope with the death of their only child or all of their children. In Loving Memory believes that one of the best ays to remember our children and to reinvest, is to help others.
Patient-Centered Guides: Patient Activists
Each month www.Oncourse.com will add a ne profile of someone who is actively supporting patient efforts to heal, cope, or improve healthcare.
Memories of Max - A Father's Story
This website contains a book which is a true story about a journey. It is, in fact, the final stage of a journey which started on July 24, 1993. It is a journey of emotions. "It was a painful journey which I never dreamt of taking". It involves three cancers, a death, and two-and-a-half years of reconciliation with those events.
Chemochik
"My name is Deiah Haddock and I am a 16-year-old cancer survivor!. This is just a place for me to post my writings, pictures, and to keep everyone updated on my ever-changing life!"
Jugs and Hope Club
What's this club all about? It's about you making a very small effort that could have a tremendous impact on a small child.
Camps for Kids
Children's Oncology Camping Association International
http://www.coca-intl.org/
A listing of approximately 65 camps in the US and others elsewhere in the world that have camps for cancer kids.
Camp Simcha
http://www.chailifeline.org/camp_simcha.asp
Chai lifeline sponsors a kosher camp for Jewish children with cancer in New York.
Camp Fantastic - Special Love Program
http://www.speciallove.org/progrmfr.html
A program out of Maryland which includes local contact number. Summer camping program, as well as other weekend programs throughout the year. - Review 12/8/01
Camp Sunshine
http://www.campsunshine.org/
A camp in Maine that offers week long camping for the entire family who has a child with cancer. There are workshops, recreational activities and medical support available.
Camp Quality USA
http://www.campqualityusa.org
Camp Quality is a summer camping experience and year-round support program for children with cancer.
Hole in the Wall Gang Camp
http://www.holeinthewallgang.org/
A camp in NE Connecticut that offers camping experiences to children with cancer and blood diseases. There is a lot of info on this site about the camp.
Boggy Creek Camp
http://www.boggycreek.org/
A camp in central Florida that serves children with different types of medical needs.
Camp Make A Dream
http://www.campdream.org
A camp in Montana with programs for cancer kids, sibs, teens and young adult camp experiences.
BaseCamp Candlelighters Children's Cancer Foundation
http://www.basecampccf.com
A camp in Central Florida for cancer children |
